Just a quick update for those keeping track. Owen was supposed to have surgery yesterday 12/13 for testicle repair and his feeding tube. Due to a scary respiratory infection, we moved surgery to 12/28. This is better, if you ask me, because nursing starts on the day we come home and it will be nice to not to have to juggle the nurse and the holidays. The nurse will come from 8pm-8am for night feedings among other things, but will afford us the chance to sleep during all the surgeries coming.
Yes, nursing was approved.
Spinal cord surgery has been scheduled for January 20. The good news is that O's spinal cord, where its tethered does not have a fatty deposit, so the neuro-surgeon thinks that it won't re-tether. He said the ones that have issues with re-tethering are usually the ones with a fatty deposit and he has none. So hopefully it will be a smooth surgery and we don't have to ever do it again.
The neuro-surgeon has brought on appointments with the plastic surgeon who will close the wound and the urologist who needs to see how his system works now since the surgery is close to the base of the spinal cord where all your nerves that work the lower part of your body are.
Owen finally got his RSV shot, not that it prevented us from a respiratory infection, however, let's hope it prevented us from having a worse one.
Other than that, its the regular ortho, pulmonary and therapy appointments as usual.
Owen O is doing much better now and has gotten back to his happy little self. He is not eating right yet, but this whole respiratory infection has confirmed for us that a feeding tube over the next few months is necessary. He has lost weight over the week and refused to eat for the most part, drinking 1 ounce here and there. He refused bananas yesterday, with his lips sealed and shaking his head no. He never refuses bananas.
Our pulmonologist had a nebulizer delivered and that has been working well. He is on a low dose of steroids from now through surgery to make sure we don't have this issue again.
Oddly enough, Owen hates Amoxicillan. Who hates the pink medicine? Gavin and Caleb would drink it by choice if they could. But again, I am met with pursed lips and shaking head. Owen shaking his head no is very very cute. It doesn't help with the administration of needed antibiotics, but it is cute.
And that's all folks...for now.
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